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August 27, 2004

Comments

Maggie

Trisha...I'm soooo sorry for your misery...I know just what you are feeling...hang in there...take your pain medication...Is it liquid pain medication?...if not, and it hurts to take them by mouth...try putting the tablet in a spoon full of jelly...then just swallow it...it goes down easy that way...drink plenty of liquids...is your throat an icky white...thats the healing process...Trisha...you will feel better...tell yourself that okay?...just hang in there,okay? you will turn the corner soon..I know you feel depressed...I did as well...thinking you will NEVER get well...but you will...and you will feel so much better than before...Hang in there friend...you can do it...I know there are a lot of people reading this who know just how you feel...I'm praying for you...Let me hear from you...Maggie

TRISHA

Oh maggie, I am riding in the death bed you described! I am 56, had the surgery July 2nd. What a painful, miserable ship I am on. Where is day 3 or day 9 you turn the corner? My corner must be on the other side of the world.. {I forgot, the world is round } I have given up on feeling better tomorrow. I am holding tightely and praying for the strength to get through another hour.

My scabs are coming off in dust flakes. Can you tell I am depressed? Thanks for letting me cry on your shoulder.

Thad

Lori: I have had CCT for about 8-10 years now and my doctor in highschool told me that there was nothing that could be done at the time. I recently started getting the "water in the ears" feeling about 6 months ago. Everytime I breath through my nose my ears pop on the breath in and on the breath out. Today I asked my doctor my new doctor if there is anything that could be done and she referred me to a specialist. I'm going in on the 20th of August to see what he thinks of it. I've been getting sore throats and dry mouth quite often lately also.
Do my symptoms in my ears sound similar to what you had?

Lori

follow up to Jun 29th tonsillectomy.....i feel great!! the pain in my neck is still gone and when the dr checked my ears yesterday they were normal....no more eustachian tube disfuntion...he thinks is was more due to the fact that he cauterized my adenoids then from my tonsils being removed....i disagree thought, but...i don't care at this point...if i never feel like my ear is plugged with water again, 24/7, it will have all been worth it. I am eating normally. the only think i am avoiding is hot hot things. I think it was the worst during the first week....you know you have to swallow and you know your throat is gonna hurt and there is nothing you can do about it, but there will be an end to it!!
When considering whether or not to get your tonsils out, ask yourself if you want to live with yucky tonsils and all that goes with it forever or deal with the tonisillectomy and know that you will never have to deal with those nasty things again.
I think the real test for me is whether or not i will be sick from Nov to Mar. Its well worth it though to have the neck pain and ear issue GONE!! Good luck everyone.

debersue

Everyone's experience is different and I would also suggest people read through the entries. This way you can go into surgery/recovery with an overall idea of the challenges of having a tonsillectomy. One thing to keep in mind is the quality of life. I put off having the surgery for years because I didn't want to take two weeks off from work. I'm 36 and finally came to the conclusion that quality of life is important. Two weeks...or even 8 weeks is a good chunk of time but its worth it in the long run. Good luck everyone!

Pearl

Joanna: not everyone suffers the trauma that Maggie obviously did. She, according to her own accounts, had mitigating circumstaces, possibly her reaction to mold. I really suggest to everyone considering a tonsillectomy that you read this entire web posting from the beginning to assist in any decision you face regarding possible surgery for removal. I had my tonsillectomy at 54, having battling this problem for over 30 years. I returned to work in two weeks. The doctor said it was the worst case of tonsils, like leather, that he had ever seen. Lesson: everyone is different.

joanna

thanks maggie,very interesting read.Iwill try to get that Mucinex.I do have to be careful what i do use though because i suffer from a lung problem and its better for me to have mucus that is easy to bring up so not sure i will be able to use that.As for the lumpy feeling in my throat its just at the bottom of my neck.....its worse after i have eaten as my food feels as though its stuck there!Ithink i will probably go to see my doctor about it as it seems to be getting worse.

Maggie

Joanna, I don't mind you asking me questions...you can ask me anything and I will give you an honest answer..About the "lump" in your throat...do you mean in the middle of your throat when you swallow...or do you mean feel like there is "something on the side near your tonsil" when you swallow...I would feel (both sides) at different times like there was what I would describe as just something there, like swallowing and feeling something that you knew shouldn't be there...both of my tonsils had that nasty hard white,yellow, stuff coming out...I have never believed personally, that it was debris, because I could pull this stuff out from one day to the next hours apart...no way debris could form that quick, and turn to that putrid stuff in a matter of a few hours...I always believed it to be hardened pus...I know that sounds really gross...but its just my personal opinion.Also, without my throat even being a little sore, this junk would come out...not to be confused with what the docs call"puss pockets" which is the white substance "attatched" to the tonsil...this was actually coming out of the hole in my tonsil...not attatched to anything...2 different things here.About the post nasal drip...I suffered from repeat sinus infections when in the moldy house...by the way since moving out of the sick house...I haven't had one single sinus infection...but I don't know for sure if my tonsils had anything to do with my sinus infection...have you tried Mucinex...to dry the drip up...you can get it over the counter now...My doc says instead of taking one tablet every 12 hrs, which is what is recommended on the box, take 2 every 12 hrs., she told me that was the prescribed dose before it went up for sale over the counter...but you might want to check that one out with your doc...Rachel, I had sore throats off and on but that was NOT the reason I was having them removed...sure I would suffer from the sore throats...but the junk coming out of them was unbearable for me ...plus I was still suffering from the fatigue and overall achy feeling, actually feeling like sh_t every day...but to look in my throat...unless a piece of that junk was on its way out of my tonsil...you would just see an irritated looking throat...I also had one side worse than the other..the antibiotics you are talking about no doubt will clear the "white pus balls" on your tonsils, but do you have that junk coming out of them as well?...And you WILL feel better when they are out...Anyone who has suffered through illness for a period of months or years at times , it will seem like you are never going to feel "normal" and well...I know all too well what that feels like..It became one thing after another...my marriage suffered greatly...because I was always feeling poorly, no energy, laying down frequently , which is what you HAVE to do with Chronic Fatigue, it was hard for my healthy husband, to understand that my ailments were real...When we were in the moldy house...he also suffered with repeat sinus infections, but never as many as I had nor was he as sick as I was, different people react different to mold, but he did suffer constant headaches. I forgot to mention earlier, I also suffered with short term memory loss, I "lost" my wedding ring one day and it took me 8 hrs to finally find it in the drawer where I laid it down to put lotion on my hands!...I can remember having to repeat from my bedroom to the refrigerator...take something out for dinner...take something out for dinner, if I didn't repeat this...I would end up never even walking in the kitchen! that bad...I am happy to report that my short term memory is about 90% returned...maybe the other 10% is old age...hahahah...ahhh, finally something to laugh about...Maggie

rachel

I've been treated 3 times in the last 6 months for tonsillitis & am scheduled to have a tonsillectomy in August. Currently, I've been unwell for a little over a month. The antibiotics cleared the white pus balls on my tonsills, but my throat is still sore, my neck feels full, & I'm fatigued all the time now. Anyone else tired all the time with their tonsilitis? PLEASE tell my I will feel better after having my tonsils removed. God bless.

joanna

hi maggie thanks for your reply.Hope you dont mind me asking but did you suffer from a strange feeling like a lump was stuck in your throat? My tonsils are in an awful state so i will suffer whatever to get them removed.I also have a post nasal drip which runs down my throat so i am hoping this to will get better when i get them out.Everyone says life is so much better since they had the tonsils out and am really hoping it works for me too.

Maggie

Hey everyone...this will really raise some eyebrows...I developed these "white,chunky,cheesey,Pockets) in my tonsils, after living in a moldy house for 2 years, they condemned the house, we tore it down and rebuilt another in its place on our property...this was in 1998 way before people were discovering they were becoming sick from mold...so we were grandfathered in this "mold thing"...anyway, the mold pounded my immune system so much, I developed these "pockets"...I also developed shingles after living in the house for 6 months, I was 38 yrs old and the doctor was shocked I had them...he tested me for HIV,Lupus, and every other autoimmune disease he could think of...when he found nothing...he just said it was probably from stress...Older people 55-over usually develop shingles,not as common among younger people...anyway in hind sight...the mold triggered so many ailments, including, headaches,constant sinus drainage, and sinus infections(i had NEVER had one in my life until I moved into this moldy house),I would get rid of one sinus infection only to develop another one in 4-6 weeks..the doctors said I had allergys, so I went and got tested to see just what in the "air" I was allergic too....oak,pigweed, something was making me sick and I wanted to know the culprit...to my surprise...I was allergic to nothing!...just Mesquite...thats it Mesquite...and that allergy was on the serious side...that explains why as a child I would step on a Mesquite thorn and it would fester up and get infected, taking weeks to heal...my sister would pull hers out and go on her merry way...figures...anyway...I wasn't even allergic to any of the molds commonly found in houses or just in the air in large amounts...we finally had our insurance company send these "enviromental specialists out of Arizona to test our house...Bingo...we had over 8 different molds of extremely high levels in our house...non of them stachybotrys...the bad black mold...but the other ones were enough to make me extremely sick and pound my immune system...after immediately moving out of our home (which by the way we had just spent over $60k rennovating) after hasseling with Farmers Insurance for more than 2 years...I was still not well...I still had Chronic Fatigue, and overall achy body...felt horrible...like I was very ill, just couldn't find what dreaded disease I had!...well it was Cryptic Tonsils...behold the final culprit depriving me of good health...to make the rest of a long story short...we tore down our newly rennovated moldy home...and built a fabulous 2 story 4750sq.ft house...not with insurance money! with our own money...Farmers dropped us on our head...they paid us only 60k...including out of pocket living expenses which we were covered for...which means we ended up with very little...oh well....such is life...It could have been worse I guess...at least we had good enough credit to get Interim Financing!!...Cryptic Tonsilitis...bad,bad,stuff...good luck to you Dawn....sounds like you can see the light at the end of the tunnel...Maggie

dawn

I have been up all night searching the web for info on chronic fatigue, epstein-barr virus, mono, even lupus, for a reason to blame these chronic sore throats, earaches,and tiredness w/ a general achy, not feeling good and general cranky existence. I have been on 4 different antibiotics, a steroid, a antihistimine, etc... None of those meds. help. A where does this ugly stringy, thick mucus/puss drain from down the back of my throat? And not to mention the ugly white puss things I cough up that leave "holes" in my tonsils? I am always having to gargle w/ h/peroxide & a germ killing mouth rinse, in fear of a serious infection. I am glad to stumble accross this website w/ all the comments from everyone. I have been complaining for about a 1 year now, to 4-5 different doctors. I have never even heard of CCT. On Monday, I am making an appt. to see a ENT guy, asap. I am almost %100 this is it--I will check in after I see my new doctor. Thanks so much to everyone who shared their stories!

Maggie

Joanna, please forgive my bluntness. But I really wanted to be honest about my experience..it doesn't mean yours will be as bad,but at least you know how bad it can be...don't be afraid...you will feel so much better with them out. My life was miserable for years until I had them removed...if I had to make the decision again, I would still have them removed..in the state they were in, they were TOXIC, and so was my health..its no joy ride, but the alternative, not having them out and suffering for years to come is even worse...Just keep in mind how good you will feel after the healing...I had Chronic Fatigue, Constant sore throat, ear pain, neck pain, headaches and over all malaise... 5 years later and I'm healthy!...Sorry I scared you, I thought being honest was the best way to go...and remember my experience is just one out of millions...Not everyone was as sick as I was I'm sure...Maggie

joanna

dear maggie,must admit i was ok about having my tonsils removed until i read your experience..... now i'm terrified!!I am nearly 40yrs old and am due to have them removed beginning of September.Ihave been very undecided about this because i know its gonna be painful but was actually hoping to recover in about 1-2 wks.Now i am definately having second thoughts,however the ruddy things are such a pain!

Maggie Willborn

WOW..I had my tonsils out in 2002 I was 42 Yrs old at the time...I also was diagnosed with cryptic tonsilitis, well my doctor prescribed liquid hydrocodone for the pain...which worked okay...but what he didn't tell me was that it wasn't just a week or two ordeal! I was sicker than a dog for 8 weeks...right after the surgery you get worse instead of better(dr. said this is to be expected)..well I wish he would just have been honest from the beginning and instead of saying "no problem", you will need 2 weeks off of work, tell me the truth...The truth being...considering your age of 42yrs of age...your tonsils are deeper than that of lets say a 20yr old...a lot deeper...and we have to get ALL the tissue out...this will mean cutting them out which will leave a 1-2" hole on each side...I continued to get worse for about 3 weeks...thinking,how much worse can I get...without dying?...I had to sleep sitting up...I had radiating sharp pain going from my jaw into my ears(both) of them. I have had 2 children (natural,not even an aspirin) and this is by far the most miserable I have ever been in my life!...and I even opted to have a filling done by my dentist with NO anesthesia...so I'm no sissy!...after the 3-4 week I s l o w l y...started to feel a tiny bit better about every 4-5 days...it took several more weeks to feel any kind of normal...Thank God my husband was there to take good care of me...who says you want ice cream!! Horse spit!! I wanted something warm...but couldn't even swallow that...I had to let it slide down my throat...after the first week...my husband would take an over easy egg and really cut it up in little tiny bits..I would then eat it with a spoon and let it just slide down...at least I was getting some protein...I was sick,sick,sick, the sickest I've ever been in my entire 47 years...but...I feel great now...the best decision I have ever made was to get them out...I was so tired of feeling sick and tired AlL the time...by the way my Dr. said if he would have been honest and told me the truth about how miserable I was going to be...that I would have NEVER taken them out...so everyone thinking about getting this done and you are around my age...maybe younger I don't know,realize its no cake walk...you will just have to make the decision you want to feel well again...and put your big girl or boy panties on and deal with it..Its tough,tough,tough,...but the result is worth it...thanks for reading..feel free to ask me any questions...J

Melanie

Wow-I am glad that I ran across the site. I just turned 33 and have been experiencing all of the physical symptoms 3-5-7 times a year, but have never been diagnosed. Wondered for all these years what the heck the deal was. Now, setting up an appointment to have the deal dealt with, so hopefully I will be much healthier and happier in having done so-thanks for all your comments!

Jonathan

Wow hello everyone ive been reading this blog for a few days now and decided to make my appt.its on the 26th of July.Just want to say thanks to all of you who post info on this freakish thing,my girlfriend teases me cus I pick at my tonsils but I cant let the stuff just sit in there sometimes its like I can taste it.on a disgusting note,when I first found out about the white balls,my dentist told me,and that night I went at it with a magnifying mirror and extra long tweezers..omg so much came out and the older, deeper stuff was yellowish and had the worst smell ive ever smelled,now I do it once a week and theres always some more in there! im sick of this now,so I cant wait to have these tonsils out ive been getting sick since I was a teenager and im 26 now.Just hearing that my occasional fatigue and twice a year throat sickness may actually come to an end is awesome this is embarassing but a part of life and at least we care enough to notice and do something,imagine all the ppl who dont know or donk care!gross..lol

Lori

My story...I am 34 and have had cryptic tonsils for at least 3 years...i am sure longer as when i finally got around to poking them they were filled with goo and blood and sore. Anyway, it started with left ear discomfort and a pain down my left neck. I got a diagnosis of an inflamed nerve, then of muscles spasms and when i finally went to an ENT, he told me I didn't have an ear infection and signed me up for a hearing test. Well, i threw up my arms in disgust. The ENT was not concerned with the lith in my tonsils. So, for three years i dealth with the ear discomfort and various illnesses and poking my tonsils to clean them out. I was sick most of last winter, from Nov to Mar with a cold that just didn't want to go away. So, with my husbands prodding i went to my doctor (we had since moved to a new town) and she referred me to another ENT. On Jun 25, 2007 i was in his office and he diagnosed me with eustachian tube disfunction and when i told him about my tonsils he said well, they need to come out. Plain and simple and to the point!! He said the only way to make the crypts go away is to remove the tonsils and essentially what i have is low grade chronic tonisilitis. Believe it or not on Friday Jun 29, 2007 I was under the knife in outpatient surgery getting my tonsils out!! I was freaked and expected horrid pain and such but it has actually been quite tolerable....provided i stay on the meds. My dr gave me percocet, which i threw up, so i went to liquid tylenol from the grocery store...every 6 hours, along with amoxicillin and some oral gargle i do twice a day. I slept upright the first couple nights with a humidifier. i started eating as soon as i woke up from surgery.....ice cream and water. Once i got home i ate or drank milk, yogurt, scrambled eggs cooked in butter so they dissolved pretty easily (cooled of course). It hasn't been terrible. Tolerable and slightly uncomfortable, but not like i anticipated. My tongue is still sore where it was clamped, i am actually not sure if my tongue or throat aches more. i had iced coffee this am and started gargling with some cool very mild salted water - it actually doesn't burn and helps break up the thick saliva. I tried some cool cheese and broccoli soup for dinner last night and all was fine. I am on my way to feeling better...the pain in my neck is already gone!!!! yippee. I think it hurts the worst in the morning after not swallowing some much at night and your throat kinda tightens up a little. I also chew gum to help keep things going and the saliva thinned out. Good luck to all. I was petrified, but it wasn't so bad.

TRISHA

Thanks debrasue. Saw my ENT Monday for my pre-opt. He was surprised on how informed I was. Told him it was thanks to this site.
He has given me my pain medication script and something for the nasuea. Tues. 3rd of July is my big day!! Everyone keep me in mind as I go to gets these gross tonsils OUT!! I am really apprehensive and scared!

MARYELLEN

Hi everyone, I had my tonsillectomy on May 15, and feel like I'm completely recovered. My only problem is the fact that I still feel like I have something stuck in my throat. Anyone else feeling this way after surgery? That is no better than before, but I am glad to be rid of those nasty tonsil stones.

debersue

Trisha - My ENT's advice for me was to keep drinking fluids, taking the painkillers and keep the scabs under control by eating rough foods when directed. He warned me that the painkillers will only make the pain tolerable. I wasn't mentally prepared for the pain to get increasingly worse each day...for 7 DAYS. The 8th day was great because the pain wasn’t any worse than the day before. It’s going to hurt but return to a regular diet as soon as your ENT recommends it. I was concerned about controlling my asthma the day of surgery and during recovery, but otherwise, my ENT and the surgical center staff were great about discussing expectations and providing a list of information.

Generally speaking, I live alone and recommend arranging for someone to stay with you through the first night. It also helps to have a supply of ice packs and prepared foods for the first few days.

I don’t mean to scare any of you from not having the surgery because when it’s all said and done, I would do it again because it feels so much better!

TRISHA

I am 56 and go to my ENT for the fimal exam Monday June 25th before my surgery July 3rd. What kind of questions should I ask? I am getting a bit nervous as the date becomes closer. I just don't want to be in unbearable pain. Any advise would be helpful. Thanks!

Whitney

I'm so glad i found this site! I thought i was the only one with gross balls coming out of her tonsils. After bugging the doctor for three months, i got referred to an ENT. I'm scheduled for the tonsillectomy July 5. I'm a little nervous, but reading everyones comments has made me feel a little better. Thanks!

Donna

Wow, I am totally shocked and thrilled at the same time...I've had cryptic tonsils for at least 6 years. Was suppose to have them removed but I cancelled the surgergy because I really got scared. I deal with the "poking" on a daily basis and it seems to have gotten larger recently and I feel like there's always something in my throat. I had no idea there were so many others out there with the same miserable symptoms. I'm seeking out an ENT TODAY! Hopefully I can put this behind me by the end of this year....do you think 50 is too old for surgery?? Anyone here from the Long Island area that could refer an ENT?

Theresa

I am 37 and had my tonsils removed May 31 2007. I am so glad that it is over. I was suffering with chronic tonsillitis for years, and finally I had enough, my family doctor sent me to see an ENT and he decided that they should come out. My advice to anyone who is going to have this surgery is to drink plenty of liquids, try and stay away from ice cream or any milk products as they create flem, make sure you have an ice pack on hand for your neck not only does it help with the swelling put it sooths the throat, stay on top of your meds that helps keep the pain under control. My doctor prescribed Tylenol 3(whick I crushed up)and the quick disolving Gravel. I am also happy I had this done cause I lost 15 lbs. Good luck to anyone having this procedure.

Theresa

I am 37 and had my tonsils removed May 31 2007. I am so glad that it is over. I was suffering with chronic tonsillitis for years, and finally I had enough, my family doctor sent me to see an ENT and he decided that they should come out. My advice to anyone who is going to have this surgery is to drink plenty of liquids, try and stay away from ice cream or any milk products as they create flem, make sure you have an ice pack on hand for your neck not only does it help with the swelling put it sooths the throat, stay on top of your meds that helps keep the pain under control. My doctor prescribed Tylenol 3(whick I crushed up)and the quick disolving Gravel. I am also happy I had this done cause I lost 15 lbs. Good luck to anyone having this procedure.

Sharisse

Wow, I can't believe how helpful this whole blog has been. This is so much better then WebMD. I thought I was just getting sore throats until I saw the white spots on my tonsils which instantly threw me into a panic. There's a huge history of cancer in my family and that's exactly where my mind went. But I feel lots better now. My symptoms are 95% in line with most of you. I'm so glad all of you were here to discuss your symptoms and treatments. I'm out of town at the moment, but the first thing I'm doing when I get home is calling and ENT and getting these evil, swollen, hearing obstructing tonsils outta my head! *THANKS AGAIN EVERYONE! I'M REALLY GLAD YOU GUYS WERE HERE!*

debersue

It does feel good when you have turned the corner and actually start feeling better. Three weeks post surgery my throat is pink and feeling good. Yeah! Kim, I would consult with a different ENT. I was told the same thing and had to find someone else because I was sick and tired of being sick and tired. Good luck!

Mark Vane

Hi, Found a cool news widget for our blogs at www.widgetmate.com. Now I can show the latest news on my blog. Worked like a breeze.

Carrie

Hi all,

Today it's 8 days since my tonsillectomy and I am feeling on top of the world. I have even stopped taking the pain meds. I'm still going to take it easy though as I'm aware it takes weeks to heal. Am spitting up bits of greenish brown stuff which must be the scabs but not much. Think the majority must go down when you eat....gross I know! My breath is smelling better and the taste has gone too. My throat still feels a little uncomfortable, and the glands feel big but hey ho, I believe I've turned a corner!!

kim

I am also very happy that I came across this site. I have had CCT for a few years now, maybe longer. I feel like I am always sick with a cold, have sore throat, on-and-off fever, night sweats, and generally just tired all the time. I realize that this must all be related to what's going on at the back of my throat! I have been to an ENT who basically just brushed it off and he actually told me to leave the white stones alone and the holes will close up. BUt I have to pop them out or else my tonsills get really sore. This is such a frustrating condition to have because there seems to be such ignorance around it in the medical world. I really just want to have them taken out, but the ENT said he doesn't remove tonsills in adults unless its life threatening. And I feel that this would be so much easier to handle if it weren't for the swollen lymph nodes around my chin and neck. They are so sore sometimes that I have to take advil. I have been noticing that someimes the lymph nodes in my armpits and groin area feel sore too. Does anybody else have this problem?

Carrie

Hi, Boy have I felt rough these past couple of days. On Monday I had to call my mum home from work as I was feeling faint dizzy and sick, and I couldn't look after my baby. Then on Tuesday when I was shaking and nauseous all day, decided to call my husband home after telling him that I'd be fine. Thankfully he arrived last night and has taken charge of everything, leaving me to sleep lots. In the Daily Mail paper today there was an article about a girl who died from bleeding after a routine tonsillectomy so all you guys make sure you are aware of that. Last thing you want to hear when in the recovery, my thoughts to her family. Do any of you have slight green in your saliva when you spit out. I'm wondering if it's the membrane coming away? Sorry this is gross but so good to have all you people to discuss it with.

debersue

Unfortunately my breath still smells bad but am told it gets better once things have healed. I haven't looked at the back of my throat yet but it still feels pretty raw. I've kept up with the regular diet and haven't had problems with scabs building up or bleeding. It takes longer to eat regular food but it also helps to keep your energy up.

Carrie

Thanks Debersue. The last couple of days have been harder. I thought I was doing really well as I have been eating a totally normal diet....roast potatoes, toast, crusty bread etc...but it has got worse. I'm still trying to eat normally but takes me longer. I'm also feeling so tired all the time. Doesn't help that I have a baby and my husband works away. To be honest, I can cope with the pain, it's the bleeding that I'm afraid of. Really hope it doesn't happen. Another thing I was wondering is, is it normal for your breath to smell awful at this time? There's like a cabbage taste in my mouth too...nasty!!!

Thanks

Carrie

Thanks Debersue. The last couple of days have been harder. I thought I was doing really well as I have been eating a totally normal diet....roast potatoes, toast, crusty bread etc...but it has got worse. I'm still trying to eat normally but takes me longer. I'm also feeling so tired all the time. Doesn't help that I have a baby and my husband works away. To be honest, I can cope with the pain, it's the bleeding that I'm afraid of. Really hope it doesn't happen. Another thing I was wondering is, is it normal for your breath to smell awful at this time? There's like a cabbage taste in my mouth too...nasty!!!

Thanks

barbara

I forgot to ask if any of you have suffered from a bad smell occasionally after sneezing or is this something else?

barbara

I've had cct since i was 6 and I'm not sure what caused it. I am now 25 and very paranoid about having bad breath due to the condition. I constantly carry mints with me to cover the bad smell. I use a long spoon-like apparatus that I found in a jar in doctor's office to get the white balls out (its the perfect size). I also put Dr. Tichenor's antiseptic mouthwash(This can be found at Walgreen's) in a spray bottle to clean the pockets of my tonsils. If you decide to use the Dr. Tichenor's be sure to follow the directions on back. there is a warning not to use it at full strength.

debersue

I wish you the best of luck Carrie! Keep talking, eating, drinking and chewing gum because it will help you. At times it will be painful but it will make for a speedier recovery. I am at day 10 and even though the first 7 days were the worst I have ever felt...it has been worth it. My breathing has improved and can't wait to see how my throat improves as it heals. I don't want to get sick but it will be nice to simply get over a cold rather than have to go to the doctor due to tonsillitus. Good luck!

debersue

I wish you the best of luck Carrie! Keep talking, eating, drinking and chewing gum because it will help you. At times it will be painful but it will make for a speedier recovery. I am at day 10 and even though the first 7 days were the worst I have ever felt...it has been worth it. My breathing has improved and can't wait to see how my throat improves as it heals. I don't want to get sick but it will be nice to simply get over a cold rather than have to go to the doctor due to tonsillitus. Good luck!

Carrie

Just got home from my tonsillectomy. Feeling pretty good at the moment, barely needing pain relief but understand from reading previous posts that it's likely to get worse as time goes on. Five hours after the op I ate toast and actually find it less painful the more I eat, talk and chew gum. Maybe it makes the throat muscles stronger? I'm genuinely surprised with how well I feel. I'll post in a few days and let you all know how it's going.

Aijaz Ahmed

First of all, for me its simply impossible to believe that so many people out there have been through the same problem as I am going through right now....

Today I was suffering again from pain below my ears, when I try to stretch my throat muscles as if I am gulping something, I feel pain... I was thinking today that I might need my toncils to be removed... I am a 30 years old guy and am suffering with this throat issue (toncils + allergy) from the last 3 - 4 years .... I started googling and came to this wonderful archive of information ...

I plan soon to go back to Pakistan and consult an ENT to get my toncils removed...I will keep on going through your experiences and this will definitely help me to take my decision....

hope to get all the help from you guys to take the right decision..

AZ

debersue

Use cold compresses!...and make sure you have a couple of them so that you can switch them when one gets warm. I had my tonsils removed 5 days ago and am still having a lot of discomfort, but I'm really looking forward to turning the corner in a couple of days. I didn't have very much outside swelling but because my throat was so sore...you could tell I was uncomfortable by looking at my face.

Make sure you do what the doctor and nurses tell you to do because they've watch people go through this process over and over again. I'm doing what I can to minimize the complications (eating toast, chewing gum, etc.) and am hoping it's all worth it.

Daddyzgurl PA

What is best used for pain after the surgery Hot or Cold compress?

Thanks
Daddyzgurl PA (:

Daddyzgurl PA

Well it's final... I am going to get my tonsils out in 4 days I am so nervous! The ENT I visited told me that I was going to be in severe pain afterwards for at least one week.. I need to know one thing though... I know the inside of my throat will be swollen and sore... But will the swelling show on the outside? Wish me good Luck!!!

Thanks! (:

Pearl

Ron: hope you are doing ok. I was out of town and could not answer your question. I have read all the posts on this site and it seems that everyone's recovery is a bit different. My throat remained white for several weeks and the stuff slowly disappeared. I never was too worried about where it went but was glad when my throat was a pretty pink again. Good luck.

TRISHA

Thanks Mary Ellen for the post. You made me feel better. Guess I won't be getting the award for the oldest patient to get their tonsils out!

Carrie

Hi all, good luck to those scheduled for tonsillectomy. Mine was due to happen on the 17th may but it was cancelled the day before due to an emergency. Good old NHS!! Still, at least they agreed to it so mustn't grumble. I am now supposed to go in on the 31st May. Really hope it happens this time as I'm so nervous and hate it hanging over me like this. I have a 20 week old baby, and my husband works away so am dreading the weeks after. He goes back to work on day 3 so I pray she is a good quiet baby!! I will post after the op to let everyone know my experience.

Tonsilssuck

Sorry I posted again. Forgot to ask what is a Coqui?

Tonsilssuck

Sorry I posted again. Forgot to ask what is a Coqui?

Tonsilssuck

Well here goes my story.... Just wanted to post in case it helps someone else. I will try not to be to long winded. Thanks to everyone who has posted. Glad the word is getting out on this issue. My first recollection of having a tonsil stone was probably around age 10 (will be 30 July 4th) the stone just kind of came up... just one... crushed it smelled it... didn't think much of it really. Then I would say maybe once a year I would hack one up. Not a big deal just part of life I thought. Fast forward to age 22... in college as a business and music major, with voice as my instrument, singing the most I ever sang.... anyway, I kept getting a sore throat that was obviously aggravated by singing. The pain seemed to be getting worse and worse until it was radiating to my ear. Got so bad I would just mouth the words in choir and went to the student health center for ear pain. They looked at my ear and tonsil and said the eardrum looked pinkish/red and the my left tonsil looked a bit swollen/red... gave me some antibiotics... didn't help... went back and the gave me some stronger antibiotics and a little note telling the music dept I couldn't sing for a while... those antibiotics didn't help either... Well after weeks of constant pain (I mean I could not talk for more than 5 mins w/out my ear and left side of my throat hurting) I looked in the mirror and didn't see anything unusual. I couldn't tell you what first prompted me to stick my finger in the back of my and press like hell on my tonsil but man was I surprised. Chunk after chunk of tonsil Limburger cheese kept coming out. Well now my tonsil hurt like heck but within the hour I felt much better. Didn't take long to figure out that the pressure from the buildup of these stones was causing my problems (not to mention my bad breath...). An index finger massaging my tonsil has been my cure for the last 8-9 years. Here's where the story takes a twist. Another thing I discovered is that I have a hole in my eardrum (which would explain why my ear hurts like F@#$ if I do a summersault underwater, or go cliff diving, or happen to take a bad digger waterskiing. One might ask how I selfdiagonosed that I have a hole in my eardrum... Well if you can pinch your nose and blow and you hear and feel air coming out of you ear there is a hole. Oddly enough I went to the ENT 3 years ago to have my ear looked at (because I thought it was my ear that was causing my tonsil issue). The ENT couldn't see the hole but knew something was up because he said my eardrum was concaved and kind of sucked in on one edge. I also asked him about the limburger cheese in my tonsil and he said I have CCT and that crap is tonsil stones and I could use a waterpik to clean it, but anything w/ alcohol or caffeine (mouthwash, coffee ect...) would just make them form quicker. He did however refer me to another ENT for my ear. So I went to see the second ENT.. He asked me a few questions and decided that if my ear was like this for so many years without losing any hearing that it would be O.K. (I can remember being 13 and having problems with being in the water and ear pain.) Oddly enough I never asked him about the tonsil stones although he should have see the CCT diagnosis from the other ENT. Well fast-forward again to a month ago. I went to the same ENT again (was supposed to have 6 month checkups for my ear which I figured wtf do I need to go you just told me my ear is fine cause it's been like that so long). told him "I was still having problems with my tonsils and ear pain. Seemed like I keep getting a cold which correlated with pressing my tonsils and that they my tonsil tends to bleed afterwards." he asked how often I have to press them out. "I said weekly and then asked if he would like me to show him" He said " you think you can?" I was ready to bust out laughing. After pressing them out for 8-9 years I can do it on command. So I pressed a few out for him and he said. "well the only way to get rid of that is to have your tonsils out." I said let's do it... "otherwise I am ready to sick a fork in the holes of my tonsils and rip them out myself. doc laughs... and says he'll take em out nice and clean. So my tonsillectomy is scheduled for June 11th. I will be checking this board in the meantime if anyone has any questions for me I will gladly answer them, but otherwise I won't post until after my surgery. Thanks for reading..... get the word out!!!

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A Coqui in Winterfell